I will continue to update this list of resources that I have found helpful for (young adult) cancer issues. I will also come up with a better way to organize these instead of just an alphabetical list. Baby steps for now though, and please let me know if you have any suggestions to add.
Allyson Whitney Foundation – The Allyson Whitney Foundation, Inc. is a non-profit organization that empowers and fights for the interests of young adults with rare cancers. Our vision is to improve the quality of life, as well as provide emotional support for patients. Allyson Whitney Foundation primarily provides individuals with grants to ease their financial burden so that they can concentrate their energy on healing.
The Breathing Room Foundation – Our mission is to reach out to every family within a twenty-mile radius of Hatboro, PA who has a member suffering from cancer. We recognize that a cancer diagnosis affects every aspect of a family’s life; emotional, physical, spiritual, and financial. We strive to provide a family with whatever it is that will allow them a bit of “breathing room” from their daily struggle against cancer. It is our hope that this will allow them to concentrate all of their efforts toward regaining their physical health.
Cancer and Careers – Cancer and Careers empowers and educates people with cancer to thrive in their workplace by providing expert advice, interactive tools and educational events. Through a comprehensive website, free publications, career coaching, and a series of support groups and educational seminars for employees with cancer and their healthcare providers and coworkers, Cancer and Careers strives to eliminate fear and uncertainty for working people with cancer. Cancerandcareers.org informs more than 250,000 visitors per year, providing essential tools and information for employees with cancer.
CURE – Through its unique and award-winning products, CURE Media Group has become the source of information and inspiration for those on the cancer journey. CURE Media Group’s flagship product, CURE magazine, is the indispensable guide for every stage of the cancer experience. Through the magazine, educational forums, a resource guide for the newly diagnosed, a national nursing award, books, and a variety of online tools, CURE Media Group combines science and humanity to make cancer understandable. Since its inception, CURE has expanded to reflect the entire cancer continuum, including supportive care issues and long-term and late effects.
- Subscribe Here (free for cancer patients, survivors and caregivers)
For Pete’s Sake – For Pete’s Sake Cancer Respite Foundation (formerly Crossing the Finish Line) is a non-profit organization that assists adult cancer patients, their caregivers and loved ones. The foundation give these patients a break from cancer in a secure and comfortable environment. Eligible patients, along with their caregivers, receive a one-week expense-paid excursion to select vacation locations along the East Coast and in the Caribbean. For more information about the nomination process, please visit the program page.
Neuroendocrine Tumor Research Foundation – This site has a toooon of information on a variety of topics for NETs patients, caregivers, etc. The first episode of NETWise podcast is one of the best overviews of NET cancer that I’ve come across.
The Neuroendocrine Tumor Research Foundation is committed to improving, extending, and saving the lives of those affected by neuroendocrine cancer by providing information and educational resources.
- Online resources to help newly diagnosed patients chart their course and practical information to help NET survivors live their best life.
- Searchable databases of NET specialists and patient support groups in the U.S.
- Regional patient and caregiver conferences bring together patients and providers to discuss the latest tests and treatments.
- Multimedia library of the latest information on treatment and disease management approaches.
The SAMFund – The SAMFund supports young adult cancer survivors in the United States as they recover from the financial impact of cancer treatment. Through direct financial assistance, in-person and online support, The SAMFund helps young adults move forward towards their personal, professional, and educational goals.
Seas It, Cancer Recovery Through Recreation – Seas It is a non-profit organization that promotes recovery through recreation for cancer patients who seek to recapture positive thinking and to regain control over their lives. Seas It provides the resources and outlets to help cancer patients and their families shift their focus from illness to wellness. Whether it is sports, art, literature or music, Seas It acts as the catalyst to bridge the gap between the patient and his or her individualized activity or interest.
Stupid Cancer – Founded in 2007 by a young adult cancer survivor, Stupid Cancer is a non-profit organization that empowers young adults affected by cancer through innovative and award-winning programs and services. We are the nation’s largest support community for this underserved population and serve as a bullhorn for the young adult cancer movement.