ACOR Carcinoid Listserv – Email listserv that is also preserved in a searchable archives. Contact other patients and caregivers as well as Dr. Woltering. Information and questions are shared among patients. Dr. Woltering contributes all the time.
- Which tests should be done to learn more about tumors and to track disease progression and how often
- Why which lab that does your testing is important
- Treatment options
- Survival statistics
- 2012 Focus on Neuroendocrine Tumors: Patient and Caregiver Conference – You can watch the video from the conference that was held on November 2, 2012. Several of my doctors presented and a whole host of issues were covered. I wanted to attend in person, but it was too soon after my second surgery and I was still sleeping all day on the couch. You can bet your sweet bippy that I’ll be there next year though.
Octreotide Info – OncoLink – I found OncoLink through the Abramson Cancer Center’s website and it has been very helpful for early research, appointment prep, etc.
Octreotide Info – Chemo Care – I used to love watching Scott Hamilton do back flips while ice skating and recently came across this site. Each site has a slightly different information. This website focuses more on chemo and how to manage the process/side effects.
PRRT Info – Information by patients for patients about PRRT treatment, particularly in Bad Burka.